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Category: hospital

Published on Leave a comment on Me and my health.

The good news is, mentally I am fine. Phew, that's a relief.

However physically, things are a little more grim for me.
The first couple of months of the year I have struggled with foot pain. To the point where shoes and walking were a no no. Occasionally venturing out on the bike, desperate to keep my legs spinning, only to be rewarded with even worse foot pain.

With that now somewhat under control, my body thought long and hard, before giving me the next challenge. Delivered in a gold envelope by a smug looking twat in a lab coat, no wait, that's Top Gear...
Over the past few weeks, both at work and at home, people have commented on me breathing heavily. At the same time I have noticed that I labour a little with certain tasks. Usually walking or climbing stairs. Up until this time, I have been fine, walked at a good pace, climbed stairs with no issue. (Remember taking the stairs to the 22nd floor at Guys Hospital?). So obviously this has caused some concern for me.

This time of year, a lot of people with asthma (like me) struggle a little more with hayfever and other allergies causing complications. But for me that usually appears along with a chesty cough getting me all blocked up. This time, nothing. Antihistamines don't seem to help either, again they usually would. And finally my inhaler has little if no effect whatsoever.

To just spice things up a little more, my body decided to throw heart palpitations in the mix too. It's all the chest, right! Now as an avid cyclist, who strangely during all this, can actually still cycle like a nutter (confusing right!) I see my heart rate quite a lot, and push my body quite hard. Nothing abnormal shows on my HR, and there are no unexpected weaknesses or shortness of breath etc.

On speaking to my GP, he has arranged for a set of tests to be run. Bloods, heart trace, and a breathing function test. First two are done, 12 lead ECG appears fine, bloods we will see, and breathing function is being tested at the weekend. Hopefully they will point at something, as it would be a lie to say it doesn't concern me slightly. If not, the tests go on, to see what is going on in there.

I reminded myself to write this on the way back from the shops just now. Slow steady pace walking, warm but not uncomfortable day, 1 mile or so round trip. Being overtaken by people with walking trolleys, and feeling like I am labouring to carry on. Taking my heart rate on the way around, nothing shocking to see. 80-85 bpm, which is pretty good going for the conditions. Made the trip fine, but this is just one of many journeys on foot which I have made and struggled with.

The confusing part is, it can be walking or getting up that temporarily knocks me for six. But cycling, I can go on forever. The GP suggested, as expected, that weight may be a contributing factor, which I completely accept. I am indeed overweight, but should add I have not gained weight in months, so why suddenly now feel this way. And why do some less intense activities affect me worse than being bent over cycling?

Right now, it's all a mystery to me, and everyone else, but hopefully there will be some answers soon.

So that is my little update. Thanks for reading.

Published on Leave a comment on Wow this is SO much fun!

The ambulance crews (yes 2 of them) spent the best part of 2 hours with mum. Talking to her, testing her, finding thingd wrong with her etc, and everything points to a trip to the hospital.
As soon as it was mentioned, the defences went up and the arguing started. Refusal to go to Lewisham hospital, they treat her like a prisoner and she is not going there.
A rethink and how about St Thomas's. No, their patient transport there is shocking and she is not going there. The list carried on, Kings College, Guys, but no no no.
Eventually they suggested taking her to St Christophers Hospice, amazing treatment and care etc, but shock horror, NO!
Apparently her visit there last week was very bad, she could not stand the noise there and now doesn't like it.

So after an almost 2 hour stand-off they finally had to offer her the "I don't want your help" form, which she signed quite happily.

So she is left with, a urine infection, severe dehydration, an irregular heart, no appetite, no strength and no will to go on.

The GP called shortly after they left and bluntly (as he usually is) asked did she not care about the impact she was having on others, she screamed down the phone at him that she was sick and tired of caring what other people wanted, and was doing what she wanted now, and that was doing nothing, and being left to do her own thing and slip away.

Problem with that is, none of the conditions from the symptoms she is displaying are related to the cancer, so it unlikely that "this is it" at all. So instead she is committing to lots of pain and discomfort, weakness and less dependency, and infection spreading to her kidneys. Which she will no doubt say the cancer is spreading to too.

So here I am, at home, on my birthday, 3 years to the day this journey begun, wondering what I am supposed to do. I will admit I am feeling VERY resentful right now. Disappointed that mum is doing this to herself, and feeling its fair on everyone else around her to be left to cope with this.

When my sister asked earlier if she had wished me happy birthday she just grunted "NO!".

Its not about my birthday really, its about her lack of comprehension of how this impacts me and my sister. Mum doesn't want to talk to me at the moment (in the devil), hung up on the doctor, but is nice as pie to my sister, laughing and joking with her.

Oh well, I guess I better get back on track, I was meant to be having celebration pizza today, but for some reason have lost my appetite!

Thanks for reading
Regards
Michael

Sent using BlackBerry®

Published on Leave a comment on Its just…. one of those days!

Yesterday was no better. Started the day with the carer arriving 10 mins early, caught me unaware but a pleasant surprise all the same.
Later in the morning I received a call from the housing association to say there was a problem with mums benefits for the rent. So a series of phone calls later and it turns out the authorities have suspended mums benefits due to a change in circumstances.
The circumstances that changed were the tenancy going into my name, which was about 6 months ago. We were told at the time that they had an in-house benefits worker who would take care of all of that. Apparently not!
So a new claim has been started, and I have informed the housing association about it, so now we wait. All the while, if the claim is unsuccessful, my debt to them rises. Yay!

That was all closely followed by taking some rubbish outside to discover the garden wall had been knocked down by Savoy Patient Transport picking a neighbour up for hospital. So another call to the housing association to report a repair, which will be done by next week. Pah. Hopefully they will do repairs to the rest of the wall at the same time.

So on to today. Not a bad day really. Slept pretty well, woke with a bit of a headache but nothing serious. Got some fluids in me and that was soon gone. The carer.... Well she was late today, calling (at 8.30) to ask if she could come at 9 today. Well no, not really, seeing as we have to leave for the hospital at 9.15. So that visit was cancelled. Mum was able to get herself ready for the day, so not so bad.

She is still not eating or drinking much at the moment. We are seeing the hospice nurse on Thursday so I will mention it then, and she also has a home visit from them early next week too. Really just need someone to drum into her the importance of fluids. She is not in a terrible state right now, but a lot weaker than recent weeks, so keeping an eye on things. The cough and gunk on her chest is not really helping.

As for me, diet still rock solid. Another week of supplies ordered and I'm ready to go sub 220 at some point this week. Looking forwards to my celebration kebab lol.

Right, I'm all written out, so back to waiting in this waiting room for mum to be called.
Have a good day.
Regards
Michael

Sent using BlackBerry®

Published on Leave a comment on There is always somthing!

Bah, that scuppered my plan slightly. I thought I had some old foodpacks let, but turns out all I have is Veggie Soup, which is ok, but I can only really stomach one a day lol.
So eBay is my friend, and I have ordered a weeks worth of foodpacks, and can only hope they arrive soon, so I can get in the flow of things. In the meantime I need a new blender too, my old one is destroyed now. (cant use VLCD foodpacks without a blender!)

So its a Slim Fast bar for breakfast, followed by whatever I can pick up in Sainsburys on the way to work for lunch and dinner.

On the plus side, the dogs have had a nice walk this morning, and the weather was rather nice too.

In other news.......
Following mums decision on Saturday to stop taking her medication, guess what. Yup thats right, she is feeling ill again now.
Insistant that she is NOT going back to the doctors to discuss alternative medication (I beg to differ), I get the feeling there is a well thought out plan in amongst this.

One minute she will be gasping, saying how bad her breathing is, the next she is gassing on the phone to her sister with no problems. Which kind of indicates she is laying it on a little thick at times. Her conversations with the doctor on the phone are the same, to the receptionist she can talk normally, as soon as the doc is on the line is wheeze and gasp time.

Anyway, the plan I speak of..... She has an Oncology appointment on Thursday, and I get the feeling her health will fail just enough for her to say she cant make the appointment. Which of course is rubbish as I will carry here there if I have to. But I get the impression she is gonna try it. Why? Simple, she will be seeing the doctor who she saw originally who made the cancer diagnosis, and who she now intensly dislikes.

Whatever the case, she WILL be making her Oncology appointment on Thursday, and she WILL be going back to see the GP regarding alternative meds for her breathing etc. Watch this space.