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I am currently sitting at home sulking that its raining because I can't take mum out for a walk. As I sulk I look at the TV, and what's going on in Australia, Brisbane to be precise. Unbelievable scenes out there, and with the river expected to rise, its only going to get worse.

Can't really say much more other than I am humbled by their spirits in the face of such devastation. I wish you all well over the coming hours as the waters rise, and hope the damage is as little as possible, and that normality returns asap.

Take care Aussies.

Regards

Michael

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Forgive the break from blogging, I have been trying to shake the headache from hell for the past 3 days now, without much success I should add. So screens, lights and other such bright things have been a bit painful. Good thing there is no sign of the sun, or I would really be in trouble by now.

So, past few days, been a little bit manic to say the least, with appointments to arrange and attend etc but we are getting there.

The other big change is, the diet is back. Over the past couple of months, with depression setting in quite deep, comfort eating became the thing to do. Needless to say, the weight has piled on nicely. So its time to tackle it. Best way for me to get a good start is to go down the ketosis route. So for the next week or 4 I will be back on the liquid only routine, just until everything is under control. Funnily enough its probably this that has caused the headaches. Dropping Diet Coke, and Pepsi Max from your daily intake starves the body of its much loved caffeine, which in turn causes headaches. But my breakfast vanilla shake with a spoon of coffee should sort that out.

Mum on the other hand is coming on leaps and bounds right now. For the third day we have been to a third park for her to go for a stroll behind her wheelchair. She is loving it and admitting to the benefits of being more active. The speed she toddles along at is surprising me to be honest as its quite a pace. Not to mention the inclines she tackles too. All without too much breathing difficulty. Even her cough has eased up somewhat.

So yesterdays appointment was with the Audiology Dept to see about getting mums hearing aid. I have to admit I loved the office the audiologist has, a sound proof room. I had forgotten what silence sounds like. So he did his tests, and is fitting mum in for an emergency clinic next week to have a good clearout of her ear and then fit her with a temporary hearing aid. She seems quite happy about that. Fingers crossed this can all be quite quick and she can get back to watching TV etc without headphones.

I do have to apologise to mum over one thing. Hairloss. Her hair is indeed now coming out at quite a rate. But as the days pass, she is less distressed about it and more concerned and focused on solutions, what to go for, a wig, a hat etc. Nice to hear her positive side coming through again. Well done mum.
We are still not sure what extent the loss may be, but today might hold some answers. We are off to St Christophers Hospice this morning to see the nurse Karen, and one of the doctors there. The idea being that it will finally get mums feet through the door of the hospice, and she can begin to warm to the idea of visiting there once a week to have some downtime (for me too) and socialise a little bit. Hopefully this will build a little confidence and make her feel a little less alone in the whole experience.

So I guess I better get my day started, carer is 45 mins late already today, still not shown up, which leaves the rest of the morning a bit of a rush. Got to feed the dogs, get mum ready and get to the hospice for 10am. Will manage ok, but I hate my schedule being thrown out by other people (little grrr) I did however manage to get the doctors booked up which is a weight off my mind. Meds running out as well as becoming less effective now, so a review is a must.

That's tomorrow, when I also have a home visit from work. Would not mind a day off right now!

Have a good day, its miserable out there, so wrap up.

Regards
Michael

Sent using BlackBerry®

OK first off I should say, up to this point I have loved every minute of being a Virgin customer. Sure there have been a few little nagging points, but all have been addressed successfully.... Until now.

After numerous pop ups and emails from Virgin saying "hey customer, protect your computer" (or words to that effect) I gave in and installed it. It looked simple enough and nice to use. Once installed it ran a full scan, found a few files and stuff then asked me to restart, so I did.

That's when it went wrong, Blue Screen Of Death (BSOD) was immediate, and the PC has not started since. On checking the support forums and posting I have been told, if it will start in safe mode we might be able to help, other wise, sorry.

Sure I can whip the drive out, make it a slave, install another HDD with an OS on it, and retrieve the data from the drive, but come on, I installed this shit to make my computer safe, not kill it.

I am sure it never would have happened with a Mac, Apple would have fixed it for me while plying me with coffee and donuts etc, but its NOT a Mac lol.

So I am left trawling the net looking for ways to save the PC without going through all the above drama.

My advice... Think twice before installing this software!

Regards

Michael

Sent using BlackBerry®

Yup, a new years dawns, but its not because of that. Just recently I have realised how much I have been binge eating, and swore blind that as soon as I could get in the right frame of mind I would snap out of it.... So here I am.

The plan is to try and get into the routine of shakes and a severe diet for a few weeks, and see where we go from there.

The morning has been a little hectic to say the least, so believe it or not, the return to shakes is a welcome and well timed one. 1 minute meals are great, so little fuss, no cooking, and very little washing up. Now I just have to stick to it lol.

So far this morning has consisted of, up early to let the carer in, call the doctors, let workman in for the bathroom, meds for mum, feed the dogs, breakfast for me, and now time to exercise the dogs.

After that its carer in the afternoon, sister visiting, then do mums lunch and meds. Then off out to give mum some exercise.... And so on. Phew.

Had a very early night last night, so feeling a little fresher this morning, so that's a step in the right direction.

Right off to see how the day goes.

Have a good one.

Regards

Michael

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How much can change in just one day, 24 hours.... Answer, a hell of a lot!

Where do I start, so much to tell, without boring you to death. So yesterdays entry points out I was going to see a counsellor, which I did and am very grateful for. Visiting the counsellor at St Christophers Hospice it was my first chance to see the inside of the place we are trying to get mum to visit on a day basis. And it is fantastic! I know she will enjoy being there for sure, especially the pampering.

I had a long chat with the counsellor, and started to find the points that were really starting to eat away at me. The lack of rest, the explosions of tempers, the constant workload and worry. She is a lovely woman and very easy to talk to, so none of it was difficult to talk about at all. And by the the end of the meeting we had agreed that I will be returning, she will be speaking to mum and my sister, and hopefully we can all start to find some common ground. So thumbs up for that part of the day.

The Virgin guys turned up right on cue, fixed the phoneline in a flash and all is working fine there now, which means the Linkline alarm and pendant is working too now. We just tested it, and all is good there. So another little worry done away with there.

I'm not sure if it was luck or circumstances, but I sure felt like I slept well last night. Waking up feeling rested in a way I have not felt for weeks if not months now. Which brings me onto the next part. Because I feel better mentally today, sitting in the house with nothing much to do is not a worry, and does not feel like I'm hiding away from the world. Fact is its a miserable day outside and really not much can be done with it like that. I will instead get some odd jobs done around the house this afternoon once the carer and nurse have been.

Karen the nurse from St Christophers is visiting this afternoon, to check up on how everyone is doing, and to see that mum is ok following a long sleepy spell she had for the past 2 days. She seems more alert today which is good. But will be good to see Karen as I have a few questions for her, and will be good to discuss them too. She is also seeing if she can get a wheelchair brought over for mum, so we can get her out and about more... Not going anyway today obviously.

Another great relief is the arrival of mums temporary hearing aid. After getting one from Clearer Hearing after mum had her operation back in the summer, things seemed much better for mum, being able to hear was a godsend. But during her stay in hospital the hearing aid broke (ripped tube) and was then lost. Since then its been difficult.
I contacted them about spares but subsequently had to replace the whole thing anyway. So I was delighted when it arrived today complete with spare tubes too... Thank you Clearer Hearing 🙂

Mum is now sporting her new temporary hearing aid, able to hear the tv WITHOUT headphones, which is a first for a long time now, and most importantly, able to communicate with the various people who need to see her like nurses, doctors etc. Best part is hearing the tv without headphones though, as before she was constantly putting on and taking off the hearing aid, which caused the premature wear of the tube in the first place.

Joy joy!

So there you go, 24 hours later, things are quite positive for once 🙂

Thanks for reading.

Regards

Michael

Sent using BlackBerry®

Today is the day of help. With Virgin due to come and look at the phone line, and an appointment to see the family worker at St Christophers today, all seems well. With 2 things like that in one day, things will start to move along for me again soon I hope.

Phone line you say, what's so special about a phone line? Well that's really quite simple, its for mums LinkLine panic button system. Once that is up and working I will have a little more peace of mind for times like when I am out walking the dogs, knowing she is just a button press away from help.
As well of course as getting a phone service I'm paying for, that will be nice too.

As for the family worker, well that's for me. Someone to speak to about where my mind it at right now, and start finding a way to get back on the straight and narrow, as well as getting back into a good sleep pattern. I have an hour with her today to cover off all the things that are bothering me etc, and from there she can see if there is anything they can do to help, counselling, therapy, locking me up and throwing away the key!

So what else is going on today. Well first there is mum. Since stopping her steroid tablets (4 week course since she went into hospital now ended) she is sleeping. The nurse had said they had a slight upper effect, giving an energy kick, so its possible that without them she is just rather tired. Although yesterday when I tried to wake her it was quite difficult, so I am a little concerned too. Hopefully I can get some clarification on this, and maybe even look at her remaining on a small dose daily just so she has some energy.

Me, well I'm still the opposite. After getting up and staying up yesterday, towards the evening I felt tiredness creeping in and thought "yay, sleep" however when it came to the crunch, it didn't happen. I am sleeping, but its a big effort getting there, and I don't think I am reaching deep sleep. Almost sleeping with one eye (ear) open for mum needing me.
I considered a nap while the carer was here this morning, but instead just lay listening, then got up.

I have however managed to get a good walk in with the dogs this morning, lots of fresh air and clear thoughts, which is a good thing. Still trying to find that daily routine to stick with, but for now just getting pieces of it right feels good. Still eating crap, piling on the weight, so the exercise is welcomed.

I wrote a to-do list last week, and have finally managed to do one of the things from the list. Its as simple as posting a letter, but just finding the mental energy to write the envelope has been a challenge, as daft as that sounds. That's what I'm facing right now, and kind of explains where my mind is at the moment... If its for me, I can't be bothered, if its for anyone else, I feel obliged.

Right, enough whining, I'm off to get some bits done 🙂

Have a good day.

Regards

Michael

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Is that really too much to ask?
OK so over recent years I have got into a somewhat "night owl" routine, sometimes not settling for sleep til 1-2am. But that has usually been based around a routine of getting up at 9am or so (lazy I know).

But recently I just can't settle. Regardless of how tired I am, and how early or late I put my head down, it just takes forever to get to sleep. And then when I do get to sleep, its badly broken sleep, either waking up randomly throughout the night, or being awoken by my mum going out in the back garden at 3am for a cigarette (which she denies ever doing).

But now there is a further frustration, one I am suffering from right NOW! The carer. Ok I can't be hard on her, she gets buses everywhere, today is an exceptionally bad day with the schools going back and all.... But she is late!
I struggled to get up this morning, so I would be awake properly for when she arrived so I could let her in. Plan being, let her in, pop back to bed for 45 mins, sleep my headache off, be back up for when she leaves. Instead I am perched on the end of my bed, slowly waking up, hoping she shows up soon. Almost twenty past eight now, so becoming pointless to go back to bed.

It was the same story yesterday too. Pain in the ass bit is, if I wake normally and have slept well, sods law dictates that she will arrive on time. And if I decide I can't be bothered getting up in time to wake up a bit, she arrives a little early.

Now normally if I was feeling down, the world would hate me right now, and I would be feeling like such a victim of circumstances. So this is a gentle reminder to myself for such days, that the world is NOT against me, but some days its just a bit crappier than others.

On the other hand..... I still really wanna sort my sleep out. While I know I am a bit stressed and depressed which will play havoc with sleep patterns, depression making me want to sleep all day, and stress stopping me dropping off, there is middle ground to be found. I know 5-6 hours a night is not enough for me right now, and that I need an hour or two more. But to complicate things, of I go back to bed after the carer leaves I will end up over sleeping and spend the whole day groggy. Lose-lose situation lol.

Right, I'm going to commit to waking up and starting my day now I guess. 8.25, still no sign (which is a bit wrong really). So once she has been and gone, give mum meds and breakfast, call the hospital, walk the dogs, do some cleaning (floors need mopping), and all the other stuff one does daily.

Hope your day started better than mine, have a great day.

Regards

Michael

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Well yet another encounter with mum, and another explosive ending to the "conversation". Was just in the kitchen making light conversation with mum, and the topic of the carer came up. Apparently mum asked for a 5 minute boiled egg this morning and it was runny! This makes the carer completely useless and pointless to mum, and just reinforces the point that she doesn't need a carer. That's of course ignoring the fact that her statement before mentioning the carer was that she was very wobbly today.

She is hell bent on getting rid of the carer, proving she doesn't need peoples help, and right now, just making my life a misery. Naturally I try to put across the reason for having the carer, and explain what she is here to do, as well as "defend" the carer where I feel mum is being unfair. Mum does not seem to grasp or maybe just not accept the limited role of the carer, and how it is meant to work. Complaining that the carer does not understand her or speak english (which she actually does very well) is her main thing. When the St Christophers nurse offered to intervene the other day mum refused to let her, yet as soon as everyone leaves, I am left to take it in the neck.

Its times like this I understand why I am on medication and off work at the moment, because right now I'm in a dark lonely place, and as confused as hell. Am I doing right by mum? Am I meant to just roll over on my principals and agree with everything she says? Am I meant to do what I think is best for everyone? Should I get the carer cancelled? Or should I just take a chill pill and forget about it by yhe morning.

Problem is, if we go with the last option I am left with this burning feeling inside. I don't like brushing things under the carpet, forgetting about things like they never happened, its just not me. And then I'm left wondering if it didn't matter, why did it happen in the first place.

This is not the first argument, but they are getting more and more fiery, and possibly more frequent now, and I'm really running out of patience with mum and myself, as well as running out of confidence that I can handle this much more.

Her argument of me caring more about the carer than I do about her bites hard, and leaves me bitter and resentful right now, and my honest feeling right now is b****x, do it yourself then.

In closing the "conversation" I tried explaining that people are doing their best to try and help in anyway they can, and if she doesn't want their help, fine, do it herself. Her parting shot was "well they are not going to die in the next few weeks are they." Which brings us onto (now I say it and think about it) the key part....

Mum is yet to accept, face up to, and start dealing with the fact that she is dying. It must be terrifying to have someone put a tight timescale on your life, and know your time is short, and I respect her fear and emotions. My only wish is to make that time as comfortable and enjoyable as I can for her, but feeling like this.... I can't!

As I'm writing, I'm calming down (which to me is why I blog anyway) as well as making more sense of the whole situation and not just the flashpoint.
After taking a deep breath, I can see the carer thing is not working out, and will need to address that tomorrow somehow, that's numero uno. After that, the dynamic will change, so will be another thing to look at and rearrange. Am I happy with this situation? no!

So, as I calm, and my mind returns to normal thoughts (as normal as they have been recently) I shall start to ponder..... What next.

Thanks for reading and sharing a moment in my life.

Regards

Michael

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Nope for once this isn't about my family, this is about the idiots that insist on walking on the wet concrete on the new driveway. Its not rocket science, if the slab was not there the day before, it will probably be wet. The planks laid across it are the second hint that its wet... But no, none of this was enough.

Over the past couple of weeks they have laid concrete on 5 days, on each of those days someone walked through it every time.

Today they laid the last slab, and refinished the whole driveway. Not content with walking through the newest piece, they have also walked right across the whole thing for about 20+ ft, so messed up the refinish too. Well done, that's outstanding!

I'm sure by tomorrow, the barrier put across the drive will be moved and they will park on the drive too. Like I say, No telling some people.

Irritating really, having had such a crap driveway for years, I really hoped everyone would give the new lay a chance, so we had a nice driveway.... But no!

Regards

Michael

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