The past couple of weeks my sleep has been off the chart, and so have my dreams. Some pretty damn vivid ones, and some rather personal and touching ones. Almost like a blockage has been cleared and my brain is finally starting to process some of the things that weigh heaviest on me. That is what I like to think anyway. If that is actually the case is a whole other matter.
I think it would be fair to say that a lot has happened in my life which has gone completely unresolved, or even processed and accepted. I have always been great at shutting things out of my mind, and pretending they don't matter, or never happened. Not denial as such, I often refer to some of these events and recognise their role in my life, but then I tuck them neatly away again for years more.
I think it would be good to address some of those issues one day. From childhood friends dying young, to loss of family members. Losing contact with my daughter, and living knowing she is out there and I am missing so much. There is a lot to discuss one day...
But at the same time I don't put my behaviours down to those events. Some of this stuff is just hardwired and not in any way a creation of sadness and trauma in my younger life.
Earlier this year I spoke with the GP about my ongoing mental health, how it affects my day to day life, and questioned if there might be other factors that would explain things better than simply putting it down to anxiety and depression all the time. Most recently my diagnosis was social anxiety, because it fitted with how I felt about being around others, and being in busy spaces. But to me there was a little more to it than that. The medication I took changed some things for me, but not others. CBT became infuriating as I was being told exercises with the mind would resolve the remaining matters. It did not.
The route of investigation led me to explore ASD, and a referral was made by the GP in March. A recent conversation with a friend (now Oct) got me wondering why I had not heard anything back. Having put my sister down as a reference, I checked with her to see if she had heard anything. The answer was a resounding no.
This was all last night, and on top of an inactive morning, no notable exercise on the Sunday either, I was already on edge. The events over the next 30 mins or so just snowballed into a "complete clusterfuck" (medical term!). Needless to say I struggled for hours last night, and can feel the after effects today.
Ironically a great example of how some of my behaviours and mannerisms are simply not explained away with "anxiety" all the time.
Today, even though I am a little worn out from what felt like a night of terror, with weird dreams which felt very real, broken sleep, and frustration levels off the chart, I decided I would find out what was going on with the referral. I started to write an email, then decided I would call the surgery instead so there were no misunderstandings. With the noted from Patient Access in front of me, so I had the dates and comments, I placed a call to the surgery.
I spoke with reception and explained my situation, and was then put on hold. After a while she came back to me an explained she had spoken to her senior and it appeared that although I had been sent a form to fill out with my details, the issues I had, and who I wanted to use as a reference. And even though I had completed it immediately and sent it back.... It had never been actioned, so no referral was ever started.
Nice! Frustratingly the doctor I spoke to at the time is no longer at the surgery, so they are unable to simply carry on with the process.
So, back to square one I went. Speaking to the receptionist, I asked if I would need to do the 8am call to try and get an appointment to speak to another GP start the process over again. Thankfully I was told that I would be added to the list for the afternoon, and would be sent a text questionnaire to complete. Which I promptly received, completed and returned. Now I wait... Again.
This time I have a whole list written down, things to mention, questions to ask. I just have to hope that I actually get a call this time. If not I shall give it til after the morning appointments, and give them a call back and chase it. From here on in, I need to take control of it, and not be passive about it.
This whole thing is not about medication, recognition, any kind of assistance or benefit, unless of course there is something available that can actually help me control things a bit better. But it is about understanding myself. I think I have been through this a number of times now, but the most important thing to me is understanding, and learning coping strategies.
While writing this I have had a call back from the surgery, and been given a telephone appointment for next Wednesday. No idea who with, it's all a big mystery. But at least I have the appointment set, and have a list to work from.
At some point I really do need to sit down, maybe with a counsellor and talk through some of the stuff that weighs heavy on me. Get it off my chest, and into the relevant brain department for processing and storing correctly. Not hiding away on a shelf, and try to forget about it and "move on".
I should also try and not only understand and create ways to cope, but communicate them to others, so the support I receive is appropriate, rather than overwhelming and emotional.
Right, today has been enough of a struggle as it is, so I am gonna wrap up there. Hopefully I will have a better night sleep and have a clearer head for making more sense soon.